UICC World Cancer Congress 2006

Methods: "Native American Cancer Education for Survivors" (NACES) is a community-based participatory research intervention. It provides an interactive educational program that uses innovative web-based technology to help Native American cancer advocates or patients improve their quality of life during and following cancer treatment. The content is developed in partnership with (a) an all Native Cancer Survivors' Advisory Committee, (b) Native partners living in geographically diverse regions of North America; and (c) cultural and scientific experts throughout North America. The web education includes video vignettes, storytellers, samples of patient questions to ask the provider, resources, and many choices for the type of content the patient wishes to review.

Results: Results from NACES show more than 3,000 users in 6 months without any formal marketing. Although the web site is focused on breast cancer, patients of other types of cancer, of all ethnicities and both genders are currently using the information. Online evaluation is showing the information is well-accepted, particularly for the ability to tailor the information for the individual patient. Preliminary drafts are available for review at http://www.NatAmCancer.org (then click on the tree graphic). This project shows the benefits of tailored breast information for medically underserved survivors.